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ICD-11

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The ICD-11 is the eleventh revision of the International Classification of Diseases (ICD). It replaces the ICD-10 as the global standard for recording health information and causes of death. The ICD is developed and annually updated by the World Health Organization (WHO). Development of the ICD-11 started in 2007[1][2] and spanned over a decade of work, involving over 300 specialists from 55 countries divided into 30 work groups,[6][7] with an additional 10,000 proposals from people all over the world.[8] Following an alpha version in May 2011 and a beta draft in May 2012, a stable version of the ICD-11 was released on 18 June 2018,[3] and officially endorsed by all WHO members during the 72nd World Health Assembly on 25 May 2019.[9]

International Classification of Diseases 11th Revision
International Classification of Diseases for Mortality and Morbidity Statistics Eleventh Revision
AbbreviationICD-11, ICD-11 MMS
StatusActive
Year started2007[1][2]
First published18 June 2018 (2018-06-18) (stable version)[3]
Latest version2024-01
February 2024 (2024-02)[4]
Preview versionMay 2011 (2011-05) (alpha version)
May 2012 (2012-05) (beta version)[3]
OrganizationWorld Health Organization
SeriesICD
PredecessorICD-10
Domain
LicenseCC BY-ND 3.0 IGO[5]
Websiteicd.who.int/browse/2024-01/mms/en

The ICD-11 is a large ontology consisting of about 85,000 entities, also called classes or nodes. An entity can be anything that is relevant to health care. It usually represents a disease or a pathogen, but it can also be an isolated symptom or (developmental) anomaly of the body. There are also classes for reasons for contact with health services, social circumstances of the patient, and external causes of injury or death. The ICD-11 is part of the WHO-FIC, a family of medical classifications. The WHO-FIC contains the Foundation Component, which comprises all entities of all classifications endorsed by the WHO. The Foundation is the common core from which all classifications are derived. For example, the ICD-O is a derivative classification optimized for use in oncology. The primary derivative of the Foundation is called the ICD-11 MMS, and it is this system that is commonly referred to as simply "the ICD-11".[10] MMS stands for Mortality and Morbidity Statistics. The ICD-11 is distributed under a Creative Commons BY-ND license.[5]

The ICD-11 officially came into effect on 1 January 2022.[11] In February 2022, the WHO stated that 35 countries were actively using the ICD-11.[12] On 14 February 2023, they reported that 64 countries were "in different stages of ICD-11 implementation".[13] According to a JAMA article from July 2023, implementation in the United States would at minimum require 4 to 5 years.[14]

The ICD-11 MMS can be viewed online on the WHO's website. Aside from this, the site offers two maintenance platforms: the ICD-11 Maintenance Platform, and the WHO-FIC Foundation Maintenance Platform. Users can submit evidence-based suggestions for the improvement of the WHO-FIC, i.e. the ICD-11, the ICF, and the ICHI.

Structure

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WHO-FIC

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See also: Medical classification § WHO Family of International Classifications

The WHO Family of International Classifications (WHO-FIC), also called the WHO Family,[15] is a suite of classifications used to describe various aspects of the health care system in a consistent manner, with a standardised terminology.[16] The abbreviation is variously written with or without a hyphen ("WHO-FIC" or "WHOFIC"). The WHO-FIC consists of four components: the WHO-FIC Foundation, the Reference Classifications, the Derived Classifications, and the Related Classifications.[16] The WHO-FIC Foundation,[17] also called the Foundation Component,[18] represents the entire WHO-FIC universe.[19] It is a collection of over hundred thousand entities, also called classes or nodes.[19] Entities are anything relevant to health care. They are used to describe diseases, disorders, body parts, bodily functions, reasons for visit, medical procedures, microbes, causes of death, social circumstances of the patient, and much more.[16]

The Foundation Component is a multidimensional collection of entities.[19] An entity can have multiple parents and child nodes. For example, pneumonia can be categorized as a lung infection, but also as a bacterial or viral infection (i.e. by site or by etiology). Thus, the node Pneumonia (entity id: 142052508) has two parents: Lung infections (entity id: 915779102) and Certain infectious or parasitic diseases (entity id: 1435254666). The Pneumonia node in turn has various children, including Bacterial pneumonia (entity id: 1323682030) and Viral pneumonia (entity id: 1024154490).

The Foundation Component is the common core on which all Reference and Derived Classifications are based.[16] The WHO-FIC contains three Reference Classifications: the ICD-11 MMS (see below), the ICF, and the ICHI. Derived Classifications are based on the three Reference Classifications, and are usually tailored for a particular specialty.[20] For example, the ICD-O is a Derived Classification used in oncology. Each node of the Foundation has a unique entity id, which remains the same in all Reference and Derived Classifications, guaranteeing consistency. Related Classifications are complementary, and cover specialty areas not covered elsewhere in the WHO-FIC. For example, the International Classification of Nursing Practice (ICNP), draws on terms from the Foundation Component, but also uses terms specific for nursing not found in the Foundation.[16]

A classification can be represented as a tabular list, which is a "flat" hierarchical tree of categories. In this tree, all entities can only have a single parent, and therefore must be mutually exclusive of each other.[21] Such a classification is also called a linearization.

ICD-11 MMS

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The ICD-11 MMS is the main Reference Classification of the WHO-FIC, and the primary linearization of the Foundation Component. The ICD-11 MMS is commonly referred to as simply "the ICD-11".[10] The "MMS" was added to differentiate the ICD-11 entities in the Foundation from those in the Classification. The ICD-11 MMS does not contain all classes from the Foundation ICD-11, and also adds some classes from the ICF. MMS stands for Mortality and Morbidity Statistics. The abbreviation is variously written with or without a hyphen between 11 and MMS ("ICD-11 MMS" or "ICD-11-MMS").

The ICD-11 MMS consists of approximately 85,000 entities. Entities can be chapters, blocks or categories. A chapter is a top level entity of the hierarchy; the MMS contains 28 of them (see Chapters section below). A block is used to group related categories or blocks together. A category can be anything that is relevant to health care. Every category has a unique, alphanumeric code called an ICD-11 code, or just ICD code. Chapters and blocks never have ICD-11 codes, and therefore cannot be diagnosed. An ICD-11 code is not the same as an entity id.

The ICD-11 MMS takes the form of a "flat" hierarchical tree. As aforementioned, the entities in this linearization can only have a single parent, and therefore must be mutually exclusive of each other.[21] To make up for this limitation, the hierarchy of the MMS contains gray nodes.[22] These nodes appear as children in the hierarchy, but actually have a different parent node. They originally belong to a different block or chapter, but are also listed elsewhere because of overlap. For example, Pneumonia (CA40) has two parents in the Foundation: "Lung infections" (site) and "Certain infectious or parasitic diseases" (etiology). In the MMS, Pneumonia is categorized in the "Lung infections", with a gray node in "Certain infectious or parasitic diseases". The same goes for injuries, poisonings, neoplasms, and developmental anomalies, which can occur in almost any part of the body. They each have their own chapters, but their categories also have gray nodes in the chapters of the organs they affect. For instance, the blood cancers, including all forms of leukemia, are in the "Neoplasms" chapter, but they are also displayed as gray nodes in the chapter "Diseases of the blood or blood-forming organs".

The ICD-11 MMS also contains residual categories, or residual nodes. These are the "Other specified" and "Unspecified" categories. The former can be used to code conditions that do not fit with any of the more specific MMS entities, the latter can be used when necessary information may not be available in the source documentation. The ICD-11 Reference Guide advises that health care workers always aim to include the most specific level of detail possible, either with one code or multiple codes.[23] In the ICD-11 Browser, residual nodes are displayed in a maroon color.[24] Residual categories are not in the Foundation, and therefore don't have an entity ID. Thus, in the MMS, they are the only categories with derivative entity IDs: their IDs are the same as their parent nodes, with "/other" or "/unspecified" tagged at the end. Their ICD codes always end with Y for "Other specified" categories, or Z for "Unspecified" categories (e.g. 1C4Y and 1C4Z).

Health informatics

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The ICD-11, both the ICD-11 Foundation and the MMS, can be accessed using a multilingual REST API. Documentation on the ICD API and some additional tools for integration into third-party applications can be found at the ICD API home page.[25]

The WHO has released spreadsheets that can be used to link and convert ICD-10 codes to those of the ICD-11. They can be downloaded from the ICD-11 MMS browser.[26] In 2017, SNOMED International announced plans to release a SNOMED CT to ICD-11 MMS map.[27]

The ICD-11 Foundation, and consequently the MMS, are updated annually, similarly to the ICD-10. Following the initial release of a stable version on 18 June 2018,[3] the Foundation and the MMS have received six updates as of February 2024.[28][29]

Chapters

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Below is a table of all chapters of the ICD-11 MMS,[26] the primary linearization of the Foundation Component.[17]

# Range Chapter # Range Chapter
1 1A00–1H0Z Certain infectious or parasitic diseases 15 FA00–FC0Z Diseases of the musculoskeletal system or connective tissue
2 2A00–2F9Z Neoplasms 16 GA00–GC8Z Diseases of the genitourinary system
3 3A00–3C0Z Diseases of the blood or blood-forming organs 17 HA00–HA8Z Conditions related to sexual health
4 4A00–4B4Z Diseases of the immune system 18 JA00–JB6Z Pregnancy, childbirth or the puerperium
5 5A00–5D46 Endocrine, nutritional or metabolic diseases 19 KA00–KD5Z Certain conditions originating in the perinatal period
6 6A00–6E8Z Mental, behavioural or neurodevelopmental disorders 20 LA00–LD9Z Developmental anomalies
7 7A00–7B2Z Sleep-wake disorders 21 MA00–MH2Y Symptoms, signs or clinical findings, not elsewhere classified
8 8A00–8E7Z Diseases of the nervous system 22 NA00–NF2Z Injury, poisoning or certain other consequences of external causes
9 9A00–9E1Z Diseases of the visual system 23 PA00–PL2Z External causes of morbidity or mortality
10 AA00–AC0Z Diseases of the ear or mastoid process 24 QA00–QF4Z Factors influencing health status or contact with health services
11 BA00–BE2Z Diseases of the circulatory system 25 RA00–RA26 Codes for special purposes
12 CA00–CB7Z Diseases of the respiratory system 26 SA00–SJ3Z Supplementary Chapter Traditional Medicine Conditions - Module I
13 DA00–DE2Z Diseases of the digestive system 27 VA00–VC50 Supplementary section for functioning assessment
14 EA00–EM0Z Diseases of the skin 28 XA0060–XY9U Extension Codes

Unlike the ICD-10 codes, the ICD-11 MMS codes never contain the letters I or O, to prevent confusion with the numbers 1 and 0.[30]

Changes

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Below is a summary of notable changes in the ICD-11 MMS compared to the ICD-10.

General

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The ICD-11 MMS features a more flexible coding structure. In the ICD-10; every code starts with a letter, followed by a two digit number (e.g. P35)—creating 99 slots, excluding subcategories and blocks. This proved enough for most chapters, but four are so voluminous that their categories span multiple letters: Chapter I (A00–B99), Chapter II (C00.0–D48.9), Chapter XIX (S00–T98), and Chapter XX (V01–Y98). In the ICD-11 MMS, there is a single first character for every chapter. The codes of the first nine chapters begin with the numbers 1 to 9, while the next nineteen chapters start with the letters A to X. The letters I and O are not used, to prevent confusion with the numbers 1 and 0. The chapter character is then followed by a letter, a number, and a fourth character that starts as a number (0–9, e.g. KA80) and may then continue as a letter (A–Z, e.g. KA8A). The WHO opted for a forced number as the third character to prevent the spelling of "undesirable words".[30] In the ICD-10, each entity within a chapter either has a code (e.g. P35) or a code range (e.g. P35–P39). The latter is a block. In the ICD-11 MMS, blocks never have codes, and not every entity necessarily has a code, although each entity does have a unique id.[30]

In the ICD-10, the next level of the hierarchy is indicated in the code by a dot and a single number (e.g. P35.2). This is the lowest available level in the ICD-10 hierarchy, causing an artificial limitation of 10 subcategories per code (.0 to .9).[31] In the ICD-11 MMS, this limitation no longer exists: after 0–9, the list may continue with A–Z (e.g. KA62.0 – KA62.A). Then, following the first character after the dot, a second character may be used in the next level of the hierarchy (e.g. KA40.00 – KA40.08). This level is currently the lowest appearing in the MMS. The large amount of unused coding space in the MMS allows for updates to be made without having to change the other categories, ensuring that codes remain stable.[30]

The ICD-11 features five new chapters. The third chapter of the ICD-10, "Diseases of the blood and blood-forming organs and certain disorders involving the immune mechanism", has been split in two: "Diseases of the blood or blood-forming organs" (chapter 3) and "Diseases of the immune system" (chapter 4). The other new chapters are "Sleep-wake disorders" (chapter 7), "Conditions related to sexual health" (chapter 17, see section), and "Supplementary Chapter Traditional Medicine Conditions - Module I" (chapter 26, see section).

Mental disorders

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Overview

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The following mental disorders have been newly added to the ICD-11, but were already included in the American ICD-10-CM adaption: Binge eating disorder (ICD-11: 6B82; ICD-10-CM: F50.81), Bipolar type II disorder (ICD-11: 6A61; ICD-10-CM: F31.81), Body dysmorphic disorder (ICD-11: 6B21; ICD-10-CM: F45.22), Excoriation disorder (ICD-11: 6B25.1; ICD-10-CM: F42.4), Frotteuristic disorder (ICD-11: 6D34; ICD-10-CM: F65.81), Hoarding disorder (ICD-11: 6B24; ICD-10-CM: F42.3), and Intermittent explosive disorder (ICD-11: 6C73; ICD-10-CM: F63.81).[31]

The following mental disorders have been newly added to the ICD-11, and are not in the ICD-10-CM: Avoidant/restrictive food intake disorder (6B83), Body integrity dysphoria (6C21), Catatonia (486722075), Complex post-traumatic stress disorder (6B41), Gaming disorder (6C51), Olfactory reference disorder (6B22), and Prolonged grief disorder (6B42).[31]

Other notable changes include:[31]

ICD-11 CDDR

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Following an extensive, years-long revision process involving nearly 15,000 clinicians from 155 countries,[31] the WHO developed the ICD-11 CDDG (Clinical Descriptions and Diagnostic Guidelines),[33][34][35] later renamed the ICD-11 CDDR (Clinical Descriptions and Diagnostic Requirements).[36] The CDDR is a comprehensive diagnostic manual for identifying and measuring mental illnesses with a uniform terminology, similar to the DSM-5.[37][38] The ICD-11 CDDR was developed around the same time as the DSM-5, and the work groups of both projects regularly met to discuss their efforts. The CDDR and the DSM-5 are similar, but not identical.[39] The ICD-11 CDDR is the successor to the ICD-10 CDDG, which was first released in 1992[40] and was also known as the "Blue Book".[33] The CDDR is integrated into the ICD-11, and can be viewed in the ICD-11 Browser.[26] On 8 March 2024,[38] the CDDR was also released in book form. It can be downloaded for free from the WHO's website.[41]

Personality disorder

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The personality disorder (PD) section has been completely revamped. All distinct PDs have been merged into one: Personality disorder (6D10), which can be coded as mild (6D10.0), moderate (6D10.1), severe (6D10.2), or severity unspecified (6D10.Z). There is also an additional category called personality difficulty (QE50.7), which can be used to describe personality traits that are problematic, but do not rise to the level of a PD. A personality disorder or difficulty can be specified by one or more Prominent personality traits or patterns (6D11). The ICD-11 uses five trait domains: (1) negative affectivity (6D11.0); (2) detachment (6D11.1), (3) dissociality (6D11.2), (4) disinhibition (6D11.3), and (5) anankastia (6D11.4). Listed directly underneath is borderline pattern (6D11.5), a category similar to borderline personality disorder. This is not a trait in itself, but a combination of the five traits in certain severity.

Described as a clinical equivalent to the Big Five model,[42] the five-trait system addresses several problems of the old category-based system. Of the ten PDs in the ICD-10, two were used with a disproportionate high frequency: emotionally unstable personality disorder, borderline type (F60.3) and dissocial (antisocial) personality disorder (F60.2).[a] Many categories overlapped, and individuals with severe disorders often met the requirements for multiple PDs, which Reed et al. (2019) described as "artificial comorbidity".[31] PD was therefore reconceptualized in terms of a general dimension of severity, focusing on five negative personality traits which a person can have to various degrees.[43]

There was considerable debate regarding this new dimensional model, with many believing that categorical diagnosing should not be abandoned. In particular, there was disagreement about the status of borderline personality disorder. Reed (2018) wrote: "Some research suggests that borderline PD is not an independently valid category, but rather a heterogeneous marker for PD severity. Other researchers view borderline PD as a valid and distinct clinical entity, and claim that 50 years of research support the validity of the category. Many – though by no means all – clinicians appear to be aligned with the latter position. In the absence of more definitive data, there seemed to be little hope of accommodating these opposing views. However, the WHO took seriously the concerns being expressed that access to services for patients with borderline PD, which has increasingly been achieved in some countries based on arguments of treatment efficacy, might be seriously undermined."[43] Thus, the WHO believed the inclusion of a borderline pattern category to be a "pragmatic compromise".[44]

The Alternative DSM-5 Model for Personality Disorders (AMPD) included near the end of the DSM-5 is similar to the PD-system of the ICD-11, although much larger and more comprehensive.[45] It was considered for inclusion in the ICD-11, but the WHO decided against it because it was considered "too complicated for implementation in most clinical settings around the world",[43] since an explicit aim of the WHO was to develop a simple and efficient method that could also be used in low-resource settings.[44]

Gaming disorder

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Gaming disorder (6C51) has been newly added to the ICD-11, and placed in the group "Disorders due to addictive behaviours", alongside Gambling disorder (6C50). The latter was called Pathological gambling (F63.0) in the ICD-10. Aside from Gaming disorder, the ICD-11 also features Hazardous gaming (QE22), an ancillary category that can be used to identify problematic gaming which does not rise to the level of a disorder.

Although a majority[46] of scholars supported the inclusion of Gaming disorder (GD), a significant number did not. Aarseth et al. (2017) stated that the evidence base which this decision relied upon is of low quality, that the diagnostic criteria of gaming disorder are rooted in substance use and gambling disorder even though they are not the same, that no consensus exist on the definition and assessment of GD, and that a pre-defined category would lock research in a confirmatory approach.[47] Rooij et al. (2017) questioned if what was called "gaming disorder" is in fact a coping strategy for underlying problems, such as depression, social anxiety, or ADHD. They also asserted moral panic, fueled by sensational media stories, and stated that the category could be stigmatizing people who are simply engaging in a very immersive hobby.[48] Bean et al. (2017) wrote that the GD category caters to false stereotypes of gamers as physically unfit and socially awkward, and that most gamers have no problems balancing their expected social roles outside games with those inside.[49]

In support of the GD category, Lee et al. (2017) agreed that there were major limitations of the existing research, but that this actually necessitates a standardized set of criteria, which would benefit studies more than self-developed instruments for evaluating problematic gaming.[50] Saunders et al. (2017) argued that gaming addiction should be in the ICD-11 just as much as gambling addiction and substance addiction, citing functional neuroimaging studies which show similar brain regions being activated, and psychological studies which show similar antecedents (risk factors).[51] Király and Demetrovics (2017) did not believe that a GD category would lock research into a confirmatory approach, noting that the ICD is regularly revised and characterized by permanent change. They wrote that moral panic around gamers does indeed exist, but that this is not caused by a formal diagnosis.[52] Rumpf et al. (2018) noted that stigmatization is a risk not specific to GD alone. They agreed that GD could be a coping strategy for an underlying disorder, but that in this debate, "comorbidity is more often the rule than the exception". For example, a person can have an alcohol dependence due to PTSD. In clinical practice, both disorders need to be diagnosed and treated. Rumpf et al. also warned that the lack of a GD category might jeopardize insurance reimbursement of treatments.[53]

The DSM-5 (2013) features a similar category called Internet Gaming Disorder (IGD).[54] However, due to the controversy over its definition and inclusion, it is not included in its main body of mental diagnoses, but in the additional chapter "Conditions for Further Study". Disorders in this chapter are meant to encourage research and are not intended to be officially diagnosed.[55]

Burn-out

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In May 2019, a number of media incorrectly reported that burn-out was newly added to the ICD-11.[56][57][58][59] In reality, burn-out is also in the ICD-10 (Z73.0), albeit with a short, one-sentence definition only. The ICD-11 features a longer summary, and specifically notes that the category should only be used in an occupational context. Furthermore, it should only be applied when mood disorders (6A60–6A8Z), Disorders specifically associated with stress (6B40–6B4Z), and Anxiety or fear-related disorders (6B00–6B0Z) have been ruled out.

As with the ICD-10, burn-out is not in the mental disorders chapter, but in the chapter "Factors influencing health status or contact with health services", where it is coded QD85. In response to media attention over its inclusion, the WHO emphasized that the ICD-11 does not define burn-out as a mental disorder or a disease, but as an occupational phenomenon that undermines a person's well-being in the workplace.[60][61]

Sexual health

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Conditions related to sexual health is a new chapter in the ICD-11. The WHO decided to put the sexual disorders in a separate chapter due to "the outdated mind/body split".[62] A number of ICD-10 categories, including sex disorders, were based on a Cartesian separation of "organic" (physical) and "non-organic" (mental) conditions. As such, the sexual dysfunctions that were considered non-organic were included in the mental disorder chapter, while those that were considered organic were for the most part listed in the chapter on diseases of the genitourinary system. In the ICD-11, the brain and the body are seen as an integrate whole, with sexual dysfunctions considered to involve an interaction between physical and psychological factors. Thus, the organic/non-organic distinction was abolished.[63][64]

Sexual dysfunctions

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Regarding general sexual dysfunction, the ICD-10 has three main categories: Lack or loss of sexual desire (F52.0), Sexual aversion and lack of sexual enjoyment (F52.1), and Failure of genital response (F52.2). The ICD-11 replaces these with two main categories: Hypoactive sexual desire dysfunction (HA00) and Sexual arousal dysfunction (HA01). The latter has two subcategories: Female sexual arousal dysfunction (HA01.0) and Male erectile dysfunction (HA01.1). The difference between Hypoactive sexual desire dysfunction and Sexual arousal dysfunction is that in the former, there is a reduced or absent desire for sexual activity. In the latter, there is insufficient physical and emotional response to sexual activity, even though there still is a desire to engage in satisfying sex. The WHO acknowledged that there is an overlap between desire and arousal, but they are not the same. Management should focus on their distinct features.[65]

The ICD-10 contains the categories Vaginismus (N94.2), Nonorganic vaginismus (F52.5), Dyspareunia (N94.1), and Nonorganic dyspareunia (F52.6). As the WHO aimed to steer away from the aforementioned "outdated mind/body split", the organic and nonorganic disorders were merged. Vaginismus has been reclassified as Sexual pain-penetration disorder (HA20). Dyspareunia (GA12) has been retained. A related condition is Vulvodynia, which is in the ICD-9 (625.7), but not in the ICD-10. It has been re-added to the ICD-11 (GA34.02).[63]

Sexual dysfunctions and Sexual pain-penetration disorder can be coded alongside a temporal qualifier, "lifelong" or "acquired", and a situational qualifier, "general" or "situational". Furthermore, the ICD-11 offers five aetiological qualifiers, or "Associated with..." categories, to further specify the diagnosis.[63] For example, a woman who experiences sexual problems due to adverse effects of an SSRI antidepressant may be diagnosed with "Female sexual arousal dysfunction, acquired, generalised" (HA01.02) combined with "Associated with use of psychoactive substance or medication" (HA40.2).

Compulsive sexual behaviour disorder

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Excessive sexual drive (F52.7) from the ICD-10 has been reclassified as Compulsive sexual behaviour disorder (CSBD, 6C72) and listed under Impulse control disorders. The WHO was unwilling to overpathologize sexual behaviour, stating that having a high sexual drive is not necessarily a disorder, so long as these people do not exhibit impaired control over their behavior, significant distress, or impairment in functioning.[66] Kraus et al. (2018) noted that several people self-identify as "sex addicts", but on closer examination do not actually exhibit the clinical characteristics of a sexual disorder, although they may have other mental health problems, such as anxiety or depression. Experiencing shame and guilt about sex is not a reliable indicator of a sex disorder, Kraus et al. stated.[66]

There was debate on whether CSBD should be considered a (behavioral) addiction. It has been claimed that neuroimaging shows overlap between compulsive sexual behavior and substance-use disorder through common neurotransmitter systems.[67] Nonetheless, it was ultimately decided to place the disorder in the Impulse control disorders group. Kraus et al. wrote that, for the ICD-11, "a relatively conservative position has been recommended, recognizing that we do not yet have definitive information on whether the processes involved in the development and maintenance of [CSBD] are equivalent to those observed in substance use disorders, gambling and gaming".[66]

Paraphilic disorders

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Paraphilic disorders, called Disorders of sexual preference in the ICD-10, have remained in the mental disorders chapter, although they have gray nodes in the sexual health chapter. The ICD-10 categories Fetishism (F65.0) and Fetishistic transvestism (F65.1) were removed because, if they do not cause distress or harm, they are not considered mental disorders. Frotteuristic disorder (6D34) has been newly added.[63]

Gender incongruence

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Gender dysphoria of transgender people is called Gender incongruence in the ICD-11. In the ICD-10, the group Gender identity disorders (F64) consisted of three main categories: Transsexualism (F64.0), Dual-role transvestism (F64.1), and Gender identity disorder of childhood (F64.2). In the ICD-11, Dual-role transvestism was deleted due to a lack of public health or clinical relevance.[63] Transsexualism was renamed Gender incongruence of adolescence or adulthood (HA60), and Gender identity disorder of childhood was renamed Gender incongruence of childhood (HA61).

In the ICD-10, the Gender identity disorders were placed in the mental disorders chapter, following what was customary at the time. Throughout the 20th century, both the ICD and the DSM approached transgender health from a psychopathological position, as transgender identity presents a discrepancy between someone's assigned sex and their gender identity. Since this may cause mental distress, it was consequently considered a mental disorder, with distress or discomfort being a core diagnostic feature.[68][69][70] In the 2000s and 2010s, this notion became increasingly challenged, as the idea of viewing transgender people as having a mental disorder was believed by some to be stigmatizing. It has been suggested that distress and dysfunction among transgender people should be more appropriately viewed as the result of social rejection, discrimination, and violence toward individuals with gender variant appearance and behavior.[71] Studies have shown transgender people to be at higher risk of developing mental health problems than other populations, but that health services aimed at transgender people are often insufficient or nonexistent. Since an official ICD code is usually needed to gain access to and reimbursement for gender-affirming care, the WHO found it ill-advised to remove transgender health from the ICD-11 altogether. It was therefore decided to transpose the concept from the mental disorders chapter to the new sexual health chapter.[63]

Antimicrobial resistance and GLASS

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The group related to coding antimicrobial resistance has been significantly expanded from ICD-10 to ICD-11.[72] Also, the ICD-11 codes are more closely in line with the WHO's Global Antimicrobial Resistance Surveillance System (GLASS).[8] Launched in October 2015, this project aims to track the growing worldwide resistance of malicious microbes (viruses, bacteria, fungi, and protozoa) against medication.[73]

Traditional medicine

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"Supplementary Chapter Traditional Medicine Conditions - Module I" is an additional chapter in the ICD-11. It consists of concepts that are commonly referred to as traditional Chinese medicine (TCM), although the WHO prefers to use the more general and neutral sounding term traditional medicine (TM). Many of the traditional therapies and medicines that originally came from China also have long histories of usage and development in Japan (Kampo), Korea (TKM), and Vietnam (TVM).[74] Medical procedures that can be labeled as "traditional" continue to be used all over the world, and are an integral part of health services in some countries. A 2008 survey by the WHO found that "[i]n some Asian and African countries, 80% of the population depend on traditional medicine for primary health care". Also, "[i]n many developed countries, 70% to 80% of the population has used some form of alternative or complementary medicine (e.g. acupuncture)".[75]

From approximately 2003 to 2007,[76] a group of experts from various countries developed the WHO International Standard Terminologies on Traditional Medicine in the Western Pacific Region, or simply IST.[b][77] In the following years, based on this nomenclature, the group created the International Classification of Traditional Medicine, or ICTM.[c][76][79] As of February 2023, Module I, also called TM1,[80][81] is the only module of the ICTM to have been released. Morris, Gomes, & Allen (2012) have stated that Module II will cover ayurveda, that Module III will cover homeopathy, and that Module IV will cover "other TM systems with independent diagnostic conditions in a similar fashion".[76] However, these modules have yet to be made public, and Singh & Rastogi (2018) noted that this "keeps the speculations open for what actually is encompassing under the current domain [of the ICTM]".[82]

The decision to include T(C)M in the ICD-11 has been criticized, because it is often alleged to be pseudoscience. Editorials by Nature and Scientific American admitted that some TM techniques and herbs have shown effectiveness or potential, but that others are pointless, or even outright harmful. They wrote that the inclusion of the TM-chapter is at odds with the scientific, evidence-based methods usually employed by the WHO. Both editorials accused the government of China of pushing the WHO to incorporate TCM, a global, billion-dollar market in which China plays a leading role.[83][84] The WHO has stated that the categories of TM1 "do not refer to – or endorse – any form of treatment", and that their inclusion is primarily intended for statistical purposes.[85] The TM1 codes are recommended to be used in conjunction with the Western medicine concepts of ICD-11 chapters 1-25.[81]

Other changes

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Other notable changes in the ICD-11 include:

  • Stroke is now classified as a neurological disorder instead of a disease of the circulatory system.[86]
  • Allergies are now coded under diseases of the immune system.[86]
  • In the ICD-10, a distinction was made between Sleep disorders (G47), included in nervous system diseases chapter, and Nonorganic sleep disorders (F51), included in the mental disorders chapter. In the ICD-11, they are merged and placed into a new chapter called sleep-wake disorders, since the separation between organic (physical) and non-organic (mental) disorders is considered obsolete.[64]
  • "Supplementary section for functioning assessment" is an additional chapter that provides codes for use in the WHO Disability Assessment Schedule 2.0 (WHODAS 2.0),[87] the model disability survey (MDS),[88] and the ICF.

Footnotes

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  1. ^ It is perhaps important to note that the ICD has never featured the category narcissistic personality disorder (NPD), unlike the DSM, which has it since DSM-III and codes it under the ICD-category Other specific personality disorders (ICD-9: 301.8; ICD-10: F60.8). Patients who might have NPD are sometimes also diagnosed with Dissocial/Antisocial personality disorder (ICD-9: 301.7; ICD-10: F60.2).
  2. ^ The abbreviation "IST" is used in official WHO documentation.[77] Other abbreviations that have been used are "WHO-IST"[76] and "WHO ISTT".[74]
  3. ^ Morris, Gomes, & Allen (2012) also used the term "International Classification of Traditional Medicine-China, Japan, Korea" (ICTM-CJK).[76] This term does not appear in official WHO documentation, and has only limited use.[citation needed] Also, Choi (2020) have used the term "ICD-11-26" to refer to the TM-chapter.[78]

References

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  1. ^ a b WHO (15 April 2016). "International Statistical Classification of Diseases and Related Health Problems: update on the eleventh revision" (PDF). apps.who.int. Archived (PDF) from the original on 20 October 2016. The eleventh revision of the International Classification of Diseases (ICD-11) started in 2007.
  2. ^ a b Rodrigues, Jean-Marie; Schulz, Stefan; Rector, Alan; Spackman, Kent; Üstün, Bedirhan; Chute, Christopher G.; Della Mea, Vincenzo; Millar, Jane; Brand Persson, Kristina (2013). "Sharing Ontology between ICD 11 and SNOMED CT will enable Seamless Re-use and Semantic Interoperability". Medinfo 2013. 192 (Medinfo 2013): 343–346. doi:10.3233/978-1-61499-289-9-343. Since 2007, the World Health Organization has been working on the next revision of the International Classification of Diseases – ICD-11
  3. ^ a b c d "ICD-11 Timeline". who.int. Archived from the original on 5 May 2019.
  4. ^ "ICD-11 2024 release". www.who.int. WHO. 8 February 2024. Archived from the original on 13 April 2024. Retrieved 21 August 2024.
  5. ^ a b WHO. "Terms of Use and License Agreement" (PDF). icd.who.int. Archived (PDF) from the original on 10 September 2021.
  6. ^ Badr A (17–19 September 2019). Fifth regional steering group meeting Bangkok (PDF) (Report). WHO/EMRO.
  7. ^ Pickett D, Anderson RN (18 July 2018). Status on ICD-11: The WHO Launch (PDF) (Report). CDC/NCHS.
  8. ^ a b "WHO releases new International Classification of Diseases (ICD 11)" (Press release). Geneva, Switzerland: WHO. 18 June 2018. Archived from the original on 31 May 2019.
  9. ^ "World Health Assembly Update, 25 May 2019" (Press release). Geneva, Switzerland: WHO. 25 May 2019. Archived from the original on 30 July 2019.
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  22. ^ See these screenshots: 1, 2.
  23. ^ WHO. "2.8.5 Residual categories – "Other" and "Unspecified"". ICD-11 Reference Guide.
  24. ^ Talk:ICD-11/Archive 1#Residual nodes are maroon-colored
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  33. ^ a b First, Michael B.; et al. (5 February 2015). "The development of the ICD-11 Clinical Descriptions and Diagnostic Guidelines for Mental and Behavioural Disorders". World Psychiatry. 14 (1): 82–90. doi:10.1002/wps.20189. PMC 4329901.
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  36. ^ Reed, Geoffrey M.; et al. (7 May 2022). "Emerging experience with selected new categories in the ICD-11: complex PTSD, prolonged grief disorder, gaming disorder, and compulsive sexual behaviour disorder". World Psychiatry. 21 (2): 189–213. doi:10.1002/wps.20960. The change in title from CDDG to CDDR relates to the development by the WHO over the past decade of a body of policies that define guidelines in a specific way that is not applicable to the CDDR.
  37. ^ Pezzella, Pasquale (7 May 2022). "The ICD‐11 is now officially in effect". World Psychiatry. 21 (2): 331–332. doi:10.1002/wps.20982. PMC 9077598.
  38. ^ a b "New manual released to support diagnosis of mental, behavioural and neurodevelopmental disorders added in ICD-11" (Press release). Geneva, Switzerland: WHO. 8 March 2024. Archived from the original on 8 March 2024.
  39. ^ WHO (8 March 2024). Clinical descriptions and diagnostic requirements for ICD-11 mental, behavioural and neurodevelopmental disorders (PDF) (electronic ed.). p. 8. ISBN 978-92-4-007726-3. Archived (PDF) from the original on 9 March 2024. In this regard, ICD-11 and DSM-5 are quite similar to one another, though not identical, and substantially different from ICD10 and DSM-IV.
  40. ^ Google Books entry on the ICD-10 CDDG
  41. ^ WHO (8 March 2024). "Clinical descriptions and diagnostic requirements for ICD-11 mental, behavioural and neurodevelopmental disorders (CDDR)". who.int. Archived from the original on 8 March 2024.
  42. ^ Irwin L, Malhi GS (July 2019). "Borderline personality disorder and ICD-11: A chance for change". The Australian and New Zealand Journal of Psychiatry. 53 (7): 698–700. doi:10.1177/0004867419837365. PMID 30897927. S2CID 85446539.
  43. ^ a b c Reed GM (June 2018). "Progress in developing a classification of personality disorders for ICD-11". World Psychiatry. 17 (2): 227–229. doi:10.1002/wps.20533. PMC 5980531. PMID 29856549. PD was conceptualized in terms of a general dimension of severity, continuous with normal personality variation and sub-threshold personality difficulty.
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  45. ^ DSM-5, pp. 761-781.
  46. ^ Rumpf HJ, Achab S, Billieux J, Bowden-Jones H, Carragher N, Demetrovics Z, et al. (September 2018). "Including gaming disorder in the ICD-11: The need to do so from a clinical and public health perspective". Journal of Behavioral Addictions. 7 (3): 556–561. doi:10.1556/2006.7.2018.59. PMC 6426367. PMID 30010410. Their arguments led to a series of commentaries, most of which were in favor of including the new diagnosis of GD in the ICD-11.
  47. ^ Aarseth E, Bean AM, Boonen H, Colder Carras M, Coulson M, Das D, et al. (September 2017). "Scholars' open debate paper on the World Health Organization ICD-11 Gaming Disorder proposal". Journal of Behavioral Addictions. 6 (3): 267–270. doi:10.1556/2006.5.2016.088. PMC 5700734. PMID 28033714.
  48. ^ van Rooij AJ, Ferguson CJ, Colder Carras M, Kardefelt-Winther D, Shi J, Aarseth E, et al. (March 2018). "A weak scientific basis for gaming disorder: Let us err on the side of caution". Journal of Behavioral Addictions. 7 (1): 1–9. doi:10.1556/2006.7.2018.19. PMC 6035022. PMID 29529886.
  49. ^ Bean AM, Nielsen RK, Van Rooij AJ, Ferguson CJ (2017). "Video Game Addiction: The Push To Pathologize Video Games". Professional Psychology: Research and Practice. 48 (5): 378–389. doi:10.1037/pro0000150. S2CID 148978635.
  50. ^ Lee SY, Choo H, Lee HK (September 2017). "Balancing between prejudice and fact for Gaming Disorder: Does the existence of alcohol use disorder stigmatize healthy drinkers or impede scientific research?". Journal of Behavioral Addictions. 6 (3): 302–305. doi:10.1556/2006.6.2017.047. PMC 5700722. PMID 28816518. The use of the proposed GD criteria in ICD-11 is expected to promote a higher quality of research than the current use of unstandardized, mostly self-developed instruments for evaluating problematic gaming.
  51. ^ Saunders JB, Hao W, Long J, King DL, Mann K, Fauth-Bühler M, et al. (September 2017). "Gaming disorder: Its delineation as an important condition for diagnosis, management, and prevention". Journal of Behavioral Addictions. 6 (3): 271–279. doi:10.1556/2006.6.2017.039. PMC 5700714. PMID 28816494.
  52. ^ Király O, Demetrovics Z (September 2017). "Inclusion of Gaming Disorder in ICD has more advantages than disadvantages". Journal of Behavioral Addictions. 6 (3): 280–284. doi:10.1556/2006.6.2017.046. PMC 5700721. PMID 28816495. Both diagnostic manuals (i.e., the DSM and the ICD) are regularly revised, thus characterized by permanent change. (...) Moral panics and stigmatization related to video games are mostly induced and maintained by media scaremongering and the differences in mentality of the younger and older generations (i.e., generation gap) and not the existence of a formal diagnosis.
  53. ^ Rumpf et al. (2018): "The argument of potential stigmatization is not specific to GD but relates to many other well-established mental disorders. (...) Health insurance companies and other financers of treatment may adopt the arguments raised by non-clinical researchers (e.g., "gaming is a normal lifestyle activity"); so that, those in need of treatment and with limited funds are unable to get professional help."
  54. ^ DSM-5, pp. 795-798.
  55. ^ DSM-5: "These proposed criteria sets are not intended for clinical use; only the criteria sets and disorders in Section II of DSM-5 are officially recognized and can be used for clinical purposes." (p. 783).
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  64. ^ a b Reed et al. (2019): "The classification of sleep disorders in the ICD-10 relied on the now obsolete separation between organic and non-organic disorders (...) The ICD-10 also embodied a dichotomy between organic and non-organic in the realm of sexual dysfunctions"
  65. ^ Reed et al. (2016): "Although there is significant comorbidity between desire and arousal dysfunction, the overlap of these conditions does not mean that they are one and the same; research suggests that management should be targeted toward their distinct features."
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  68. ^ Drescher J, Cohen-Kettenis P, Winter S (December 2012). "Minding the body: situating gender identity diagnoses in the ICD-11". International Review of Psychiatry. 24 (6): 568–77. doi:10.3109/09540261.2012.741575. PMID 23244612. S2CID 12805083. Until the middle of the 20th century, with rare exceptions, transgender presentations were usually classified as psychopathological.
  69. ^ Cohen-Kettenis PT, Pfäfflin F (April 2010). "The DSM diagnostic criteria for gender identity disorder in adolescents and adults". Archives of Sexual Behavior. 39 (2): 499–513. doi:10.1007/s10508-009-9562-y. hdl:1871/34512. PMID 19838784. S2CID 16336939. The DSM has consistently approached gender problems from the position that a divergence between the assigned sex or "the" physical sex (assuming that "physical sex" is a one-dimensional construct) and "the" psychological sex (gender) per se signals a psychiatric disorder. Although the terminology and place of the gender identity disorders in the DSM have varied in the different versions, the distress about one's assigned sex has remained, since DSM-III, the core feature of the diagnosis.
  70. ^ Lawrence AA (2018). "Gender Dysphoria". In Beidel DC, Frueh BC (eds.). Adult Psychopathology and Diagnosis (8th ed.). John Wiley & Sons. p. 634. ISBN 978-1-119-38360-4. The World Professional Association for Transgender Health (WPATH), for example, defined GD as "discomfort or distress that is caused by a discrepancy between a person's gender identity and that person's sex assigned at birth (and the associated gender role and/or primary and secondary sex characteristics)"
  71. ^ Robles R, Fresán A, Vega-Ramírez H, Cruz-Islas J, Rodríguez-Pérez V, Domínguez-Martínez T, Reed GM (September 2016). "Removing transgender identity from the classification of mental disorders: a Mexican field study for ICD-11". The Lancet. Psychiatry. 3 (9): 850–9. doi:10.1016/S2215-0366(16)30165-1. PMID 27474250. S2CID 206196912.
  72. ^ Compare U82-U85 in the ICD-10 to 1882742628 in the ICD-11.
  73. ^ "Global Antimicrobial Resistance Surveillance System (GLASS)". who.int. World Health Organization. Archived from the original on 2 February 2018.
  74. ^ a b Choi SH, Chang IM (September 2010). "A Milestone in Codifying the Wisdom of Traditional Oriental Medicine: TCM, Kampo, TKM, TVM-WHO International Standard Terminologies on Traditional Medicine in the Western Pacific Region". Evidence-Based Complementary and Alternative Medicine. 7 (3): 303–5. doi:10.1093/ecam/nen083. PMC 2887335. PMID 19124553.
  75. ^ "Traditional medicine fact sheet". who.int. World Health Organization. Archived from the original (Revised December 2008) on 29 January 2009.
  76. ^ a b c d e Morris W, Gomes S, Allen M (September 2012). "International classification of traditional medicine". Global Advances in Health and Medicine. 1 (4): 38–41. doi:10.7453/gahmj.2012.1.4.005. PMC 3833512. PMID 24278830.
  77. ^ a b World Health Organization: Regional Office for the Western Pacific (2007). WHO international standard terminologies on traditional medicine in the Western Pacific Region. Manila, Philippines: WHO Regional Office for the Western Pacific. hdl:10665/206952. ISBN 978-9-29-061305-3. Among the various standards in TRM, such as acupuncture point locations, information and clinical practice, the development of an international standard terminology (IST) is the very first step towards overall standardization of TRM. (p1) (...) The International Standard Terminologies project has been conducted in parallel with information standardization projects like international classification for traditional medicine (ICTM), thesaurus and clinical ontology in traditional medicine. The outcome of IST is the bases for each of these information standardization projects. (p6)
  78. ^ Choi SH (2020). "A Proposed Revision of the International Classification of Diseases, 11th Revision, Chapter 26". Integrative Cancer Therapies. 19. doi:10.1177/1534735420908334. PMC 7031786. PMID 32070150.
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  87. ^ "WHO Disability Assessment Schedule (WHODAS 2.0)". www.who.int. Archived from the original on 10 May 2023. Retrieved 31 August 2024.
  88. ^ "Disability: Model disability survey". www.who.int. Archived from the original on 24 August 2024. Retrieved 31 August 2024.
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