The International Bureau for Epilepsy (IBE) is a non-for-profit started in 1961[1] which aims to improve the social condition and quality of life of people with epilepsy.[2] The organization addresses social problems such as employment, education, driving license restrictions and public awareness.[3] Its members are from both the lay public and a professional background.[4] IBE has a network of 140 chapters in 100 countries[5] and often collaborates with the International League Against Epilepsy (ILAE) to increase understanding about epilepsy.[6]
 | |
| Abbreviation | IBE |
|---|---|
| Formation | 1961 |
| Founded at | Washington DC, USA |
| Type | Nonprofit organisation |
| Website | https://www.ibe-epilepsy.org/ |
History
editThe IBE was formed in 1961, after it was recognised at the ILAE congress the need to establish an organisation that specifically addressed the psycho-social aspects of epilepsy. In 1997, the IBE, the World Health Organization and the ILAE launched the 'Out of the Shadows' Global Campaign against epilepsy,[7] with the aim of improving acceptability, treatment, services and epilepsy preventions globally, as well as working towards closing the treatment gap.[8]
Global Chapters
editThe International Bureau for Epilepsy consists of chapters representing national epilepsy associations globally, organized into seven regional structures.[9]
International Epilepsy Day
editInternational Epilepsy Day began in 2015 and is organised each year on the second Monday of February by the IBE and the ILAE aimed at raising awareness of epilepsy.[10] In recent years, International Epilepsy Day drives the implementation of the World Health Organization's (WHO) 10-year Intersectoral Global Action Plan on Epilepsy and other Neurological Disorders (IGAP).[11]
References
edit- ^ "Mission, Objectives and Strategy for Epilepsy". International Bureau for Epilepsy. Archived from the original on 8 January 2014. Retrieved 10 January 2014.
- ^ "'About Us'". International Bureau for Epilepsy. 11 April 2024.
- ^ "IBE - International Bureau for Epilepsy". European Patients Forum. 17 April 2024.
- ^ "International epilepsy organisations". Retrieved 10 January 2014.
- ^ Trinka, Eugen (7 September 2020). "Joint Statement for the International League Against Epilepsy (ILAE) and the International Bureau for Epilepsy (IBE)" (PDF). World Health Organization. Retrieved 11 April 2024.
- ^ "Epilepsy.org". Retrieved 14 May 2014.
- ^ Prasher, Vee P.; Kerr, Mike P. (2008). Epilepsy and intellectual disabilities. New York: Springer. p. 212. ISBN 9781848002593.
- ^ "Global Campaign Against Epilepsy". International League Against Epilepsy. 26 April 2024.
- ^ "IBE Chapters". International Bureau for Epilepsy. 11 April 2024.
- ^ "IBE Strategic Plan" (PDF). International Bureau for Epilepsy. 26 April 2024.
- ^ "International Epilepsy Day". International Epilepsy Day. 17 April 2024.